Welcome to our
TOOLBOX
Here you’ll find a collection of resources and tools developed by PiCC United and made available to our members. These materials are designed to support your work, whether you are new to patient engagement, an experienced advocate, or representing a patient group.
Toolbox Material
All our tools are free to download. We are constantly updating and improving our resources, so check back regularly for new additions! If you have suggestions for new tools or experience any issues with downloads, you are always welcome to contact us.
Click the arrows to explore the exciting resources waiting for you!
POSTER
Sometimes, putting into words what it really means to be sick can be surprisingly liberating.
Download our poster filled with small quotes that reflect the many sides of life as a patient, from the everyday challenges to personal victories.
Let this poster be a reminder of the strength, resilience and even humour that can be found in living with illness.
GUIDE
Our practical Budget and Planning Tool is designed for new patient organisations like yours and guides you safely through all the critical first steps.
With this guide, you will get a clear overview of:
- Start-up costs – from legal registration and setting up bank accounts to the size and terms of the board
- Insurance – what you should consider, such as liability insurance and D&O coverage
- Legal advice and compliance – e.g. articles of association, GDPR and tax law in different countries
- Practical checklists and recommendations – to ensure the safety of your organisation’s members, volunteers and activities
It is perfect for those who want to ensure a well-thought-out, sustainable start – without losing sight of the big picture.
Download the guide now and get off to a good start with a solid financial and legal foundation for your patient organisation!
A clinical trial is an important form of research where new treatments, drugs or medical devices are tested to ensure they work and are safe to use. Clinical trials help develop new options for patients and improve the future of healthcare.
Click here to download the guide
We hope it will help you or someone you know make confident and informed decisions.
Read more in our News about clinical trails.
Or dive deeper and learn more about EU Regulation.
What you should know, ask, and confirm before saying yes!
We have put together 10 essential questions you should ask before starting any collaboration.
Download the checklist and get started.
Taking part in a clinical trial abroad?
Get a quick overview of what you need, and how to get ready.
We’ve created a handy checklist to support you if you’re travelling across borders to take part in a clinical trial. Whether it’s your first time or you’ve done it before, this resource is here to give you clarity and peace of mind.
Download the checklist and get started today.
Psychological safety – a key to stronger communities in associations
In many associations, volunteers and staff play a vital role. They give their time, knowledge, and energy, often because the mission is important to them personally. That is why it’s especially important for us, as associations, to create spaces where people feel welcome, heard, and safe.
At PiCC United, we are committed to fostering psychological safety. This means building a culture where everyone, regardless of background, experience, or role, feels confident to speak their mind, ask questions, and be honest without fear of criticism or being ignored.
Small everyday actions can make a big difference. It doesn’t require long courses, just a shared commitment to kindness, openness, and be looking out for each other.
Download our cheat sheet here, it’s made just for you, and we hope it supports your journey.
Join us on the patient journey to empowerment.
Download our quick guide, illustrating the steps patients can take to become more involved, confident, and impactful in shaping their own healthcare journey.
Get the guide here and be inspired to champion patient engagement, for yourself or those you support.
There are many impactful initiatives that can support those who want to contribute to the community. The “Stop Loneliness, Start Volunteering” handbook, is one of them. This resource offers valuable knowledge and practical tools for volunteer organisations working to combat loneliness and social isolation.
The handbook is designed to help organisations in creating inclusive and meaningful volunteer experiences. It provides practical guidance on how to build strong and sustainable volunteer networks, build safe environments and use mentorship to strengthen social bonds.
At PiCC United, where community and patient engagement are at the heart of our work, this handbook is a powerful source of inspiration. It shows how volunteering can build stronger, more inclusive communities.
Download the book here: Handbook for volunteer organisations – Stop Loneliness Start Volunteering.pdf
Volunteering is more than a good deed, it can also be an important investment in your future. Employers increasingly recognise volunteering as a powerful signal of responsibility, initiative and teamwork. But how do you make sure your volunteering stands out on your CV? Here’s a guide on how to use volunteering on your CV.
Download:
How to Make Volunteering a Valuable Part of Your CV
Support when finances get tough
Take control of your finances, and create balance in your life. Whether you’re facing unstable income, rising costs, or navigating financial challenges during illness, this guide is here to help. With clear, practical advice and realistic budgeting strategies, you can learn how to build a strong financial future and have the peace of mind to focus on what truly matters: your health and wellbeing.
Make budgeting your strength. Start your journey to financial freedom today!
Participating in a clinical trial can be a valuable opportunity to access innovative treatments and contribute to medical research. But, before making a decision, it is important to ask the right questions to ensure the trial aligns with your health needs, values, and personal circumstances.
Making an Informed Decision
These key questions are designed to help you make a confident, well-informed choice. Discuss your options with your healthcare provider, they can help discuss what’s best for your health and well-being.
Download the guide for future reference and feel empowered in making the best choice for you!
Tap the Picture to Download!
Find your challenges and resources in 4 steps
This tool is designed for anyone working as a patient advocate – whether you are just starting out or have years of experience. It helps you (or your team) gain a clear overview of your current position, the challenges you face, and the support you need to strengthen your work and make an impact, step by step.
SEE – What do you observe?
Take stock of your current activities, connections and the opportunities around you.
THINK – What are you reflecting on?
Explore your challenges, needs, and aspirations, personally and within the broader advocacy landscape.
DO – What are your next steps?
Identify actionable steps to strengthen your advocacy work, on your own or in collaboration with others.
CARE – How do you sustain yourself?
Reflect on how to maintain your energy, motivation, and well-being, avoiding burnout and building long-term resilience.
With this reflections tool, you take active ownership of your role as a patient advocate and empower yourself to grow, at your own pace, with your own resources.