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– brings together the most important updates from our projects, collaborations and patient-led initiatives.

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Modern healthcare is based on the idea of “evidence-based medicine”

Building a better evidence base Modern healthcare is based on the idea of “evidence-based medicine”.  Clinicians have access to huge databases …

Overcoming Structural Obstacles to Patient Involvement in Research

An Advocate for Patient Inclusion in Research Overcoming Structural Obstacles to Patient Involvement in ResearchPatient advocates have learned to manage …

What Is the EU Biotech Act?

What Is the EU Biotech Act – and Why Does It Matter?The EU Biotech Act is a major new legislative proposal from the European Commission – the part …

Patient Involvement in Health Technology Assessment ebook

Patient Involvement in Health Technology Assessment New international book on patient involvement has just been publishedThe long-awaited second edition of …

Patients’ voices are being taken seriously

Patients’ voices are being taken The voice of patients is on the move – and this time, the system is …

The Power of Working Together: Our Journey in the Asia-Pacific

Our Journey in the Asia-Pacific A Powerful Story of Collaboration in the Asia-Pacific RegionWe are proud to share an inspiring …

Think Big: From Lived Experience to System Change

From lived experience to system change News from our partnerMandy C. Dalyfrom Irish Neonatal Health Alliance (INHA) shares why patient …

Strengthen your credibility as a health advocate

Strengthen your credibility as a health advocate New guideBeing a patient advocate is not just about sharing your story – …

What is a clinical trial?

What is a clinical trial? Hmm… What is a clinical trial?A clinical trial is an important form of research where …

Clinic or sofa?

Clinic or sofa? Patients prefer blood sampling at homeHow do patients prefer to have their blood samples taken – at …

6-Month Report – A Strong Start for PiCC United

6-Month Report A strong Start for PiCC United6-Month Report – A Strong Start for PiCC UnitedWe have reached an important …

Key elements of a involvement contract – What should you be aware of?

Key elements of a involvement contract – What should you be aware of? What should you be aware of?When involving …

Interactive map – overview of clinical trials in the EU

Interactive map provides an overview of clinical trials in the EU Are you going to or going to participate in …

What is the European Medicines Agency (EMA)

What is the European Medicines Agency (EMA) – and why is it important to you as a patient?When we get …

Putting the patient in the driver’s seat – A new era of patient-centred healthcare

Putting the patient in the driver’s seat – A new era of patient-centred healthcare  A new era of patient-centred healthcareHealthcare …