Strategic Supporters Advisory Board members gain clear but non-commercial visibility:

• Logo on:
  • PiCC United website (Sponsors & Supporters)
  • Selected PiCC United webinars
  • PiCC United podcast (logo + verbal acknowledgement)
• Mention in:
  • PiCC United newsletter (overview of sponsors)
  • Annual report (transparency)

No sponsor has exclusive visibility or content control.

Strategic Supporters Advisory Board get’s:

• • 1 permanent seat on the Sponsorship Board (no voting rights in NGO management)
  • Participation in 2-4 annual strategic roundtables (online)
  • The board functions as a forum for discussion and reflection, not a decision-making body

Strategic Supporters Advisory Board get’s:

• Provide structured input to PiCC United’s strategic direction
• Point out:
  • Gaps in patient involvement
  • New needs, blind spots or systemic barriers
  • Cross-cutting challenges across countries, therapy areas or sectors

All input is assessed by PiCC United and used independently and without obligation.

Strategic Supporters Advisory Board get’s:

• Propose specific tasks, themes or knowledge needs that PiCC United may choose to work on
• E.g.:
  • White papers or policy-oriented analyses
  • Open discussions or workshops
  • Knowledge materials with cross-cutting relevance

PiCC United always decides whether and how a proposal is realised.

Free access to:

• • Selected PiCC United webinars
  • Public knowledge events

Invitation to Strategic Supporters Advisory Board -exclusive briefings on:

• • • Trends in patient involvement
    • Lessons learned across projects
    • New NGO initiatives

Even with the above benefits, Strategic Supporters Advisory Board does not provide:

• • The right to select patients
  • Influence on content, conclusions or positions
  • Marketing endorsement
  • Access to individual patient data

All collaboration is conducted in accordance with:

• • NGO principles
  • Transparency requirements
  • Ethical guidelines for patient partnerships

You can also download our Why – Who – What – When here: 

PiCC United Strategic Supporters Advisory Board

This business model describes how PiCC United grows sustainably, independently and ethically – without compromising the voice, integrity or autonomy of patients.

The model serves as a common reference for:

• the board and management
• partners and sponsors
• collaborating organisations
• external stakeholders

PiCC United grows through relevance – not volume.

We do not work with mass communication, aggressive visibility or sales logic. Instead, growth is built through trust, professionalism, experience and clear frameworks for collaboration.

Core assumption:

Organisations choose PiCC United because our history, experience and structure show what happens when patient involvement is done wrong – and how it can be done right.

PiCC United is not:

• a traditional patient association
• a consulting firm
• an interest group

PiCC United is:

An independent, international, non-profit knowledge and partnership community that professionalises patient involvement and protects the patient voice through structures, ethics and practice.

The positioning is based on real-life experiences – not theoretical assumptions.

Storytelling is not used as marketing, but as a strategic tool.

PiCC United works with three types of stories:

1. System stories – consequences of missing or symbolic patient involvement
2. Process stories – what changes when patient involvement is structured correctly
3. Choice stories – the ethical and organisational choices that shape the collaboration

The purpose is not to convince, but to create awareness in the recipient.

PiCC United uses a deliberate pull strategy:

• few, but strategically relevant relationships
• long-term partnerships rather than one-off projects
• repeated collaborations based on mutual trust

Examples of forms of collaboration:

• Knowledge Partners
• Strategic Supporters Advisory Board
• Advisory Councils
• EU and research projects
• Co-creation initiatives

PiCC United does not price time, meetings or individual deliveries.

We price:

• quality of patient involvement
• ethical and regulatory security
• risk reduction
• structures and governance
• credibility and legitimacy

This ensures that payment always relates to frameworks and responsibilities – not to patient voices or individual stories.

The model is designed to accommodate typical objections such as:

• ‘It’s not possible in our organisation’
• ‘We already work with patients’
• ‘Patient involvement is difficult to measure’

The answers are not found in arguments, but in:

• clear processes
• clear boundaries
• documented methods
• governance frameworks

PiCC United grows when we:

1. are re-elected
2. are recommended by existing partners
3. are invited into projects and processes at an early stage
4. are used as a strategic sparring partner – not a supplier

Growth is measured in quality, continuity and trust – not in volume.

This flow describes how organisations naturally move from interest to partnership with PiCC United – without sales dialogue, pressure or volume-based recruitment.

The flow is used equally for sponsors, knowledge partners and strategic partners.

Download our presentation here:  Sponsorship Board