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A guide to making information easy to read - An essential tool for patient organizations

Welcome to the patient journey Toolkit

A starter kit for those who want to make a difference.

This practical toolkit is designed for patient organisations that want to empower their members to take their first steps into patient engagement. 

Download and get started

You’ll find a range of editable documents and templates that can be used by both individuals and patient organisations. This is suitable at all levels of experience and engagement.

What is inside the pack?

    • A short introduction to patient involvement and engagement
    • Personal profile/CV template for patients and carers
    • Checklist: Am I ready to be involved?
    • Examples of roles: What does it mean to be a patient representative?
    • Motivation letter template
    • Guide: How to tell your story with impact
    • Reflection tool for Patient Advocates

How to use the materials?

All documents are editable and easy to adapt the needs of your organisation or audience. We recommend that you review the content to align it with your organisation’s values, add your logo, contact details, or other relevant elements. Most files are provided as Microsoft Word documents so you can easily customise them easily. You can adjust the colours, text, and layout to reflect your branding.

Want to learn more?

We’ve developed a series of free webinars that explore key topics in more depth, such as:

    • What is the difference between patient involvement and engagement?
    • How do I find my role in healthcare?
    • Collaborating with researchers, healthcare professionals, or companies.

The webinars are open to everyone and you can click the registration link: Webinar SignUp. Please write in the subject line: Patient Journey for organisations.

Click on the button below to download the entire toolkit as a zip file.

Download the Toolkit

How to open a ZIP file on your computer.

A ZIP file is like a ‘packed folder’ that contains several files in one bundle. It is an easy way to download and share multiple documents at once.

Here’s how to open the ZIP file – step by step:

On Windows:

    1. Right-click the ZIP file you downloaded.
    2. Select ‘Extract All…’ from the menu.
    3. Choose a location on your computer where you want to save the files.
    4. Click “Extract ’, your files will now be unpacked and ready to use.

On Mac:

    1. Double-click the ZIP file.
    2. macOS will automatically unpack the contents to the same folder.
    3. The files will now be available as regular, editable Word documents.

Having trouble opening the file?

Download and install a free tool like 7-Zip (for Windows) or use your Mac’s built-in Archive Utility (usually automatic).