Welcome to our
Library of knowledge
Welcome to the PiCC United Knowledge Library – a dedicated online space where patients, carers, healthcare professionals and other stakeholders can access the latest knowledge and best practices in patient engagement.
The knowledge library
You can visit the libraries as often as you like and become part of the movement towards true partnership between patients and healthcare. Our knowledge library is designed to be user-friendly and easily accessible, whether you are new to patient engagement or already have experience.
- Articles and reports on patient engagement and patient leadership.
- Online modules and e-learning to strengthen your knowledge of patient-centred practice.
- Case studies showing concrete examples of successful patient involvement in research and treatment programmes.
- Tools to implement patient involvement in your own projects.
By continuously updating the content, we make sure you always have access to the latest trends and innovative solutions in the field. See your next video under here.
Knowledge videos
Welcome to the Patient Engagement video. Here you will learn how patients are being engaged as active partners in their own healthcare – and much more than that. Patients are no longer just recipients of care, but participate in decisions, collaborate with healthcare professionals and share their unique experiences. This partnership leads to better treatment outcomes, improves the patient experience, and ensures that healthcare is meaningfully personalised to individual needs.
You can always pause the videos, come back and watch again, or re-watch them at your convenience.
We are dedicated to delivering quality content created by experts in their field. Our materials are carefully crafted with the knowledge and experience that our experts bring to each project. At the same time, we have chosen to use artificial intelligence (AI) to produce our videos, images and visual elements. This is not only a technological decision, but also a step towards ensuring that all our members have access to relevant material that is customised to their needs.
With AI, we can quickly and efficiently create visual content that is easily accessible to all members and can be customised to their individual patient engagement journey. This allows us to focus on what matters most: ensuring that patients’ voices are heard and valued in every project. Our use of AI therefore supports our mission to create stronger and more inclusive patient engagement.
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Here you can see the video about “Patient Engagement vs. Patient Involment”
You can always pause the videos, come back and watch again, or re-watch them at your convenience.
We are dedicated to delivering quality content created by experts in their field. Our materials are carefully crafted with the knowledge and experience that our experts bring to each project. At the same time, we have chosen to use artificial intelligence (AI) to produce our videos, images and visual elements. This is not only a technological decision, but also a step towards ensuring that all our members have access to relevant material that is customised to their needs.
With AI, we can quickly and efficiently create visual content that is easily accessible to all members and can be customised to their individual patient engagement journey. This allows us to focus on what matters most: ensuring that patients’ voices are heard and valued in every project. Our use of AI therefore supports our mission to create stronger and more inclusive patient engagement.
You can make the screen larger by clicking on the four small corners in a square box at the bottom right. To return to the main page, simply press Esc.
Welcome to this video about tiredness, also known as fatigue. Fatigue is an overwhelming feeling of exhaustion that can affect both the body and mind, and it often interferes with daily life. Whether it’s due to illness, treatment or stress, fatigue can make even the smallest tasks challenging. In this video, we’ll take a closer look at what fatigue is, why it occurs, and how you can manage it to energise your everyday life.
You can always pause the videos, come back and watch again, or re-watch them at your convenience.
We are dedicated to delivering quality content created by experts in their field. Our materials are carefully crafted with the knowledge and experience that our experts bring to each project. At the same time, we have chosen to use artificial intelligence (AI) to produce our videos, images and visual elements. This is not only a technological decision, but also a step towards ensuring that all our members have access to relevant material that is customised to their needs.
With AI, we can quickly and efficiently create visual content that is easily accessible to all members and can be customised to their individual patient engagement journey. This allows us to focus on what matters most: ensuring that patients’ voices are heard and valued in every project. Our use of AI therefore supports our mission to create stronger and more inclusive patient engagement.
Here you can download our book on Fatigue if you haven’t received it yet, or if you’d like to re-read it if you’ve lost it.
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Welcome to Our Interview Series
In this special series, we sit down with Mandy Daly, the inspiring Founder of the Irish Neonatal Health Alliance, to delve into the realities of patient advocacy in 2024.
In the first part, Mandy shares her perspectives on the evolving challenges patient advocates face today. From financial constraints and travel demands to communication hurdles, we explore how these barriers shape their ability to influence decision-making and drive meaningful change.
Join us on this journey as we uncover the resilience, determination, and impact of patient advocates working tirelessly to improve healthcare outcomes for all.
You can always pause the videos, come back and watch again, or re-watch them at your convenience.
You can make the screen larger by clicking on the four small corners in a square box at the bottom right. To return to the main page, simply press Esc.
In the second part of our interview series with Mandy Daly, Founder of the Irish Neonatal Health Alliance, we dive into the personal side of advocacy. Mandy opens up about moments when her voice, as a patient or advocate, wasn’t heard or valued.
Through her experiences, we’ll explore what could have been done differently to foster inclusion and respect in decision-making processes. This conversation highlights the importance of meaningful engagement and the lessons we can all learn to amplify patient voices.
Join us as we uncover the realities, challenges, and opportunities for growth in patient advocacy.
You can always pause the videos, come back and watch again, or re-watch them at your convenience.
You can make the screen larger by clicking on the four small corners in a square box at the bottom right. To return to the main page, simply press Esc.
In the third part of our interview series with Mandy Daly, Founder of the Irish Neonatal Health Alliance, we look ahead to the evolving role of patient advocates in a value-based healthcare system.
Mandy shares her vision for how future advocates can excel in this transformative landscape and discusses the critical support and training needed to empower them. From skill development to systemic change, this conversation highlights the steps required to build a stronger foundation for patient advocacy in the years to come.
You can always pause the videos, come back and watch again, or re-watch them at your convenience.
You can make the screen larger by clicking on the four small corners in a square box at the bottom right. To return to the main page, simply press Esc.
In the fourth part of our interview series with Mandy Daly, Founder of the Irish Neonatal Health Alliance, we delve into the essential elements that will shape the next generation of patient advocates.
Mandy shares her insights on thriving in a value-based healthcare system, highlighting the importance of equipping advocates with the right tools, training, and support to make a lasting impact.
This discussion sheds light on the pathways to success and the collaborative efforts needed to ensure patient advocates remain a vital force in driving healthcare innovation and inclusivity.
Join us as we envision a future where advocacy and value-based care go hand in hand.
You can always pause the videos, come back and watch again, or re-watch them at your convenience.
You can make the screen larger by clicking on the four small corners in a square box at the bottom right. To return to the main page, simply press Esc.
In the fifth part of our interview series with Mandy Daly, Founder of the Irish Neonatal Health Alliance, we focus on transforming patient engagement from symbolic gestures to meaningful collaboration.
Mandy discusses the critical steps needed to ensure that patients are not only heard but actively involved in shaping healthcare decisions. She also explores the key elements required to build genuine partnerships between patients and healthcare professionals, fostering trust, mutual respect, and shared decision-making.
Join us as we uncover what it takes to create a truly patient-focussed healthcare system.
You can always pause the videos, come back and watch again, or re-watch them at your convenience.
You can make the screen larger by clicking on the four small corners in a square box at the bottom right. To return to the main page, simply press Esc.
In the final part of our interview series with Mandy Daly, Founder of the Irish Neonatal Health Alliance, we address one of the most pressing issues in healthcare today: ensuring equality in patient engagement.
Mandy shares her thoughts on how society can create opportunities for all patient groups—regardless of socio-economic background or disease type—to have their voices heard. She also sheds light on the challenges of achieving equal access to shared decision-making and how we can work together to overcome these barriers.
Join us as we close this inspiring series with a call to action for a more inclusive and equitable future in patient advocacy.
You can always pause the videos, come back and watch again, or re-watch them at your convenience.
You can make the screen larger by clicking on the four small corners in a square box at the bottom right. To return to the main page, simply press Esc.
Welcome to Our Interview Series with members
Eleven years ago, I was diagnosed with an incurable cancer, with a life expectancy of just four years. Much of my success in navigating this journey is thanks to my wife, Angela—a healthcare professional and an incredible advocate. I often call her my “unfair advantage.” Inspired by her unwavering support, I founded SoCPA with the mission of ensuring that everyone facing cancer has access to that same unfair advantage.
One of my most memorable experiences was speaking at a Janssen off-site strategic meeting, where I was asked about bone marrow biopsies—a procedure I’ve undergone nearly 20 times. I shared my perspective, emphasizing that while the process isn’t as painful as many fear, there is a moment of intense discomfort when the marrow is drawn. The pain lasts only a few seconds and stops immediately after.
Following the event, I received a call from the Share Network, which organizes these talks. They told me my presentation was one of the most well-received they’d ever had. But what truly moved me was hearing about an executive who had approached them in tears. She had a bone marrow biopsy scheduled and had been unable to sleep for two days due to anxiety about the pain. After hearing my explanation, she felt reassured—finally able to rest.
Knowing that my words could provide comfort and make such a meaningful impact was an incredible feeling.
High School C.A.R.E.s – Cancer Advocacy & Resiliency Education
The High School C.A.R.E.s initiative is designed to “Rewrite the Rules for Cancer Prevention & Advocacy.” This program has already generated significant interest both in the U.S. and internationally. We are currently working to bring an adapted version to Barbados, where we hope to make a lasting impact on cancer education and advocacy.
Symbol & Theme
- Mascot Idea: The Phoenix
The phoenix represents rebirth and resilience—perfectly symbolizing the journey of cancer patients and advocates. It embodies transformation, strength, and overcoming adversity, aligning with our mission of education and cancer resilience. - Theme Songs:
- “Eye of the Tiger” – Survivor
- “Fight Song” – Rachel Platten
- “Don’t Stop Believin’” – Journey
- Mascot Idea: The Phoenix
These songs reinforce the program’s message of perseverance, determination, and the power to overcome challenges.
Our books are designed to inspire and motivate you to take control of your life and achieve your goals, no matter how big or small. All our books are free to download and read across devices – whether you prefer to read on your computer, tablet or smartphone.
