What is patient engagement in research? Patient engagement in research means actively involving patients and carers in the planning, design, and execution of research projects. It ensures that research is aligned with real-world needs and experiences. Patient engagement in research is no longer a “nice to have” — it is becoming a fundamental requirement […]
Building Stronger Patient Voices – From Experience to Impact On March 21, the Philippine Alliance of Patient Organizations (PAPO) launched its Foundations of Patient Leadership & Advocacy Series — a timely and important initiative aimed at strengthening patient organizations from the ground up. At PiCC United, we often talk about lowering the barrier to […]
Patient Involvement in Health Technology Assessment New international book on patient involvement has just been published The long-awaited second edition of the book Patient Involvement in Health Technology Assessment has now been published – and it is more relevant than ever. The book is an international standard work that focuses on meaningful patient involvement in […]
Strengthen your credibility as a health advocate New guide Being a patient advocate is not just about sharing your story – it’s about being taken seriously as an equal partner. This guide provides practical advice on how to strengthen your credibility and stand stronger in your encounters with healthcare professionals, decision-makers and organisations. Why is […]
What is a clinical trial? Hmm… What is a clinical trial? A clinical trial is an important form of research where new treatments, drugs or medical devices are tested to ensure they work and are safe to use. Clinical trials help develop new options for patients and improve the future of healthcare. Download our simple […]
Key elements of a involvement contract – What should you be aware of? What should you be aware of? When involving in research or healthcare projects, it is crucial that the contract is clearly defined and contains several key elements. This ensures that both you and the involving organisation (e.g. a hospital, research institution or […]
Interactive map provides an overview of clinical trials in the EU Are you going to or going to participate in a clinical trial? Find the interactive map makes it easier for patients and healthcare professionals to get a quick and up-to-date overview of clinical trials across the EU. The initiative ensures greater accessibility to information […]
Psychological safety – an important key to strong communities in associations In many associations, both volunteers and employees play a large and important role. They give their time, knowledge and commitment – often because the cause is important to them personally. That is why it’s especially important that we, as associations, create a place where […]
Payment and insurance in patient advocacy roles When your voice becomes counselling – what does that mean for you as a patient advocate? As a patient advocate, participating in patient councils, panels or advisory roles, you have a big impact. Your experience shapes research, treatments and decisions. But it also raises questions about liability, safety […]
How patients help innovate better healthcare technology Why should patients have a say? Imagine you get a new phone, but it’s really hard to use. The buttons are the wrong way round and you don’t quite understand how it works. Wouldn’t it be smarter if the people who are going to use the phone were […]
