Patient Involvement in Health Technology Assessment New international book on patient involvement has just been published The long-awaited second edition of the book Patient Involvement in Health Technology Assessment has now been published – and it is more relevant than ever. The book is an international standard work that focuses on meaningful patient involvement in […]
Our Journey in the Asia-Pacific A Powerful Story of Collaboration in the Asia-Pacific Region We are proud to share an inspiring contribution from Paul Mendoza, President of Psoriasis Philippines and PsorAsia+Pacific.In this personal reflection, Paul describes how patient communities across low- and middle-income countries in the Asia-Pacific region are joining forces to overcome shared challenges—from […]
From lived experience to system change News from our partner Mandy C. Dalyfrom Irish Neonatal Health Alliance (INHA) shares why patient expertise belongs in research, policy, regulation, and healthcare decision-making. When I first stepped into the world of patient advocacy, I never imagined that my journey would one day include conversations with regulators, global […]
Strengthen your credibility as a health advocate New guide Being a patient advocate is not just about sharing your story – it’s about being taken seriously as an equal partner. This guide provides practical advice on how to strengthen your credibility and stand stronger in your encounters with healthcare professionals, decision-makers and organisations. Why is […]
What is a clinical trial? Hmm… What is a clinical trial? A clinical trial is an important form of research where new treatments, drugs or medical devices are tested to ensure they work and are safe to use. Clinical trials help develop new options for patients and improve the future of healthcare. Download our simple […]
Key elements of a involvement contract – What should you be aware of? What should you be aware of? When involving in research or healthcare projects, it is crucial that the contract is clearly defined and contains several key elements. This ensures that both you and the involving organisation (e.g. a hospital, research institution or […]
Interactive map provides an overview of clinical trials in the EU Are you going to or going to participate in a clinical trial? Find the interactive map makes it easier for patients and healthcare professionals to get a quick and up-to-date overview of clinical trials across the EU. The initiative ensures greater accessibility to information […]
Psychological safety – an important key to strong communities in associations In many associations, both volunteers and employees play a large and important role. They give their time, knowledge and commitment – often because the cause is important to them personally. That is why it’s especially important that we, as associations, create a place where […]
Payment and insurance in patient advocacy roles When your voice becomes counselling – what does that mean for you as a patient advocate? As a patient advocate, participating in patient councils, panels or advisory roles, you have a big impact. Your experience shapes research, treatments and decisions. But it also raises questions about liability, safety […]
How patients help innovate better healthcare technology Why should patients have a say? Imagine you get a new phone, but it’s really hard to use. The buttons are the wrong way round and you don’t quite understand how it works. Wouldn’t it be smarter if the people who are going to use the phone were […]
