This Community Is for Everyone
This community is for everyone – whether you’re new to the role of patient advocate, a seasoned patient expert, or an active participant in patient groups. We offer different ways to get involved so you can make the most of your experience and knowledge.
We believe that everyone, regardless of your experience or background, should have the opportunity to become an active part of the healthcare system. We offer different ways to get involved so you can make the most of your experience and knowledge.
Whether you’re brand new to patient advocacy or an experienced voice already making a difference, there is a place for you with us.
three unique groups
We strive to make signing up as simple and intuitive as possible. The buttons below guide you to the right registration option, whether you are new to patient advocacy, already a patient advocate and expert, or representing a patient organisation.
We recommend that you choose the category that best suits you – either as a patient/patient advocate or as a patient organisation. That way we can adapt the material to your needs.
New to Patient Advocacy
Patient Advocate and Expert
Representative of a Patient Organisation
Work with us
We believe that patient voices have the power to change healthcare.
PiCC United provides you with the tools to take control of your healthcare, actively participate in research, and collaborate with other patients to create better outcomes.
What you get as a member
e-Books
Tool Box
Opportunities
Explore Opportunities
Are you unsure where to find patient involvement opportunities? Whether you’re a patient organisation, researcher, or healthcare provider, we can help connect you with the right resources. Work with us to engage patients in your research or activities through our tailored support options.
Spread the Word
Show your support for PiCC United by purchasing our merchandise and sharing our message.
For many patients it is hard to know where to go to find the opportunities that exist. Whether you are a patient organisation, researcher, healthcare provider, or any other organisation that wants to work with patients, please let us know about any opportunities for involving patients that we can share with our community.
You can also work with PiCC United to deliver your patient engagement or research activity. There are different ways to do this ranging from finding and supporting representative patients, through to a fully outsourced administration model that allows for interaction in a way that is compliance-reviewed and supported with fully audit-ready reports. (Behind the scenes, we can sort out who is an external partner, the method for engagement needed, etc. We don’t have to complicate the simple message here if we can manage it appropriately after contact is made.)
PiCC United will share annual reports that provide an overview of funds and spending within PiCC United throughout the year. This will ensure the transparency required for the community and funders to hold the PiCC United Board to account.
All funds given to PiCC United will be used for the running of PiCC United itself, the delivery of patient support materials, and patient-identified projects.
There are three main funding options:
Sponsorship: Either of the community, or specific projects and activities (with built-in transparency reporting).
Donations: Support the community by making a donation and to help us amplify patient voices, drive meaningful change in healthcare, and empower communities. Every contribution makes a difference!
Partnering on Research Grants: Collaborate with us to drive innovation and deliver impactful patient-centred outcomes. Together, we can enhance research quality and ensure that patient voices are at the heart of the process.
Funding and Transparency
At PiCC United, we ensure transparency in our funding and spending. Support our mission through sponsorship, donations, or research collaborations, and help us drive impactful patient-centred projects.
Picc United shop! We would love for you to feel proud of the community and help to spread the word by buying, using, and wearing our merchandise.
Joining the Community
If you are a patient, carer, or representative of a patient organisation, the best way to support us is by joining the community, getting involved in opportunities, and sharing your thoughts and perspectives so that the community can grow and learn together.
Let yourself be inspired
Whether you’re looking for practical tips or inspiration, you’ll find it here.
From informative videos and webinars to insight-packed eBooks, our library offers something for everyone, whatever your level of experience. This library will grow and develop over time as we learn together and listen to what each of us needs and finds helpful. Get inspired, discover new perspectives, and stay up to date with the latest in patient engagement through our growing collection of resources.
PiCC United's Code of Conduct
We value compassion, cooperation, responsibility, excellence, and transparency. Everyone is expected to behave respectfully and professionally, ensuring equal opportunities for all. Issues can be reported confidentially, and violations may lead to sanctions. Your feedback is crucial to our continuous improvement.
You can choose to report an issue, provide feedback, submit a complaint, share an idea, or whistleblow confidentially. For more details, please read our Code of Conduct or download it directly from this space.
