A Free Global Community for Patient Advocates and Professionals Working in Patient Engagement. Many patient advocates, caregivers, and independent professionals work alone.
They often carry significant responsibility and contribute valuable expertise, but may lack a trusted community where they can ask questions, share experiences, discuss challenges, and stay up to date with new developments in patient engagement.
PiCC United has created PiCC Illuminum — a free international community for individuals committed to meaningful patient involvement who want to be part of a supportive and collaborative network.
Why PiCC Illuminum?
Working independently can be deeply rewarding, but it can also be isolating.
Questions frequently arise, such as:
How should I price my work?
How do I handle contracts and confidentiality agreements?
What is fair compensation?
How do I manage ethical dilemmas or conflicts of interest?
How can I continue developing my skills?
Who can I turn to when I need advice or support?
PiCC Illuminum was created to provide a professional home where people can connect, learn, and support one another.
What Members Receive
Membership is completely free of charge. By joining PiCC Illuminum, members gain access to:
Regular Online Network Meetings
Interactive sessions where members can discuss practical questions, share experiences, and learn from peers.
Knowledge Sharing
Updates on new trends, tools, frameworks, and opportunities related to patient engagement.
Collaboration Opportunities
Connections with others who may wish to collaborate on projects and initiatives.
Peer Support
A trusted environment where members can seek advice and exchange ideas with others who understand the field.
Optional Visibility and Referral Opportunities
Members who wish to be considered for paid assignments may choose to complete a voluntary validation process.
Validated members may:
Be introduced to organisations seeking specific expertise.
Receive referrals to relevant project opportunities.
Benefit from administrative support for contracts, invoicing, and payment coordination.
Where PiCC United manages an assignment, an administrative fee of up to 10% of the project value (minimum €100) may be retained to cover coordination and administration.
Participation in PiCC Illuminum itself remains entirely free.
Who Can Join?
PiCC Illuminum is open to:
Patient advocates and caregiver advocates
Independent consultants
Researchers and clinicians
Health literacy specialists
Shared decision-making experts
Professionals working in patient-centred healthcare and research
Whether you are highly experienced or still developing your practice, you are welcome if you share a commitment to meaningful and ethical patient engagement.
You Are Not Alone
Joining PiCC Illuminum means becoming part of a patient-led community where knowledge is shared, questions are welcomed, and collaboration is encouraged. Together, we can make meaningful patient partnerships easier, stronger, and more sustainable.
Our Vision
We believe that people working to strengthen the patient voice should not have to work in isolation.
Through PiCC Illuminum, PiCC United aims to:
Foster collaboration and mutual support
Share practical knowledge and experience
Strengthen quality and integrity in patient engagement
Build a stronger global community
Interested in Joining?
We warmly welcome patient advocates, caregivers, and professionals who would like to be part of a supportive international community dedicated to advancing meaningful patient engagement.
Become part of PiCC Illuminum by completing a short application form. Membership is free and open to patient advocates, caregivers, and professionals working with patient engagement.
Step 2 – Project Opportunity
You identify a project or assignment through your own network, existing clients, or new business opportunities. If you wish, the work can be carried out under the PiCC United umbrella.
Step 3 – Contact PiCC United
PiCC United helps prepare and manage the necessary agreements with the client and, where relevant, with you as the professional delivering the work.
Step 4 – Contracting
PiCC United helps prepare and manage the necessary agreements with the client and, where relevant, with you as the professional delivering the work.
Step 5 – Delivery
You carry out the assignment and deliver the agreed services directly to the client.
Step 6 – Payment
PiCC United invoices the client and manages the payment process. Once payment has been received, the agreed administrative fee (up to 10% with a minimum fee of €100) is retained, and the remaining amount is transferred to you.
Example
A pharmaceutical company requires a patient engagement strategy workshop.
Total contract value: €8,000
Administrative fee to PiCC United (10%): €800
Payment to the professional: €7,200
If the assignment were €900:
10% = €90
Minimum fee applies: €100
Payment to the professional: €800
Interested in Joining?
We warmly welcome patient advocates, caregivers, and professionals who would like to be part of a supportive international community dedicated to advancing meaningful patient engagement.