What is PiCC United?
Enabling Meaningful
Patient Involvement
PiCC United supports patients, professionals, and organisations in working together to improve how healthcare and research include patient perspectives.
How PiCC United works
PiCC United is a patient-led NGO focused on patient involvement and patient engagement in healthcare and health research.
PiCC United connects patients, carers, healthcare professionals, researchers, and organisations to improve how patient perspectives are included in decision-making, clinical research, and healthcare systems.
Through structured collaboration, practical tools, and accessible engagement models, PiCC United supports the implementation of meaningful patient involvement in real-world settings.
The organisation works across sectors to strengthen inclusive, ethical, and effective patient engagement practices at both project and system level.
PiCC United ensures that patient involvement is not only included—but effectively applied in practice.
What does PiCC United do?
PiCC United focuses on making patient involvement more accessible, structured, and impactful.
We do this by:
- Supporting patient engagement and co-creation in healthcare and research
- Providing practical tools, resources, and education
- Facilitating collaboration between patients, professionals, and organisations
- Supporting ethical, transparent, and compliant patient involvement
- Strengthening inclusion and diversity in patient engagement
Who is PiCC United for?
PiCC United works with:
- Patients and carers who want to get involved—regardless of experience
- Healthcare professionals and researchers seeking meaningful patient input
- Organisations working to improve patient engagement practices
- Strategic partners collaborating on healthcare innovation and research
Why does PiCC United exist?
Patient involvement is widely recognised as important, but often difficult to implement in practice.
PiCC United exists to:
- Lower the barriers to participation
- Create more inclusive and accessible ways to get involved
- Ensure that patient perspectives are meaningfully integrated into healthcare and research
How does PiCC United work?
PiCC United operates through a structured, patient-led approach that connects people, knowledge, and systems.
This includes:
- Direct engagement and co-creation with patients
- Collaboration with organisations and partners
- Sharing knowledge and influencing system-level practices
What makes PiCC United different?
PiCC United is not a traditional membership organisation.
Instead, we operate as a collaborative platform and facilitator, enabling patient involvement in practice.
Our approach is:
- Patient-led
- Inclusive and accessible
- Practical and scalable
- Ethical and transparent
- Focused on real-world impact
Our mission & Vision
Mission
To make patient involvement more accessible, inclusive, and impactful by lowering barriers and enabling meaningful participation across healthcare, research, policy, and innovation.
Vision
A future where patient involvement is not an exception, but a standard—embedded in how healthcare and research decisions are made.
Read more: https://piccunited.org/mission-vision/
PiCC United works to ensure that healthcare is shaped with patients and carers—not only for them.